Web-based Clinical Assessment Program for Parkinson's : " As part of its ongoing efforts to develop research tools that can speed the availability of life-transforming treatments for Parkinson’s disease, The Michael J. Fox Foundation announced the launch of its Web-based Clinical Assessment Program. Under this initiative, the Foundation seeks to drive the creation and testing of Web-based tools that would allow any patient with a personal computer and an Internet connection to participate in clinical research from the comfort of their own home.
Historically, clinical research in Parkinson’s and other diseases has required patients to travel, often several hours or more, for in-person interviews, examinations and tests. This is a burden for anyone living with a disease, and takes an incredible toll on people with PD, where unpredictable motor and non-motor effects, as well as the efficacy and side effects of medication, vary from day to day.
“A Web-based clinical assessment can never entirely take the place of face-to-face interactions between patients and researchers,” said Katie Hood, CEO of MJFF. “But as a supplemental measure it could heighten efficiency and help speed progress toward new treatments."
This is a great idea . I am sure it can be applied to lots of other diseases as well ! Patient support groups can use the power of numbers to do their own research with such clever applications.
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